Wednesday, March 27, 2013

Fixed!


At 10:00 a.m. I was wheeled back in to the EP lab. I wasn’t scared till I got in there. I had been listening to my iPod and praying before that. I was moved and moved again on the cold hard table, sticky pads were attached that would help direct the doctor as he mapped out my heart’s electrical system and defibrillator pads were placed on me just in case. One of the nurses, Sally, noticed that I was getting scared by all the chat that was going on. She explained that the lab had just been updated and I was being used as a training exercise for a couple for the nurses to learn how the new magnet worked and how exact you had to place the sticky tabs. Sally was very sweet to me. She asked about my tattoos and kept calling me sweetheart. I wish she had been able to stay right next to me the entire time.

I remember being really frightened at all the people in the room; I counted six without knowing exactly how many were in the observation room with all the monitors. I tried to smile but instead two tears ran down my face. Sally wiped them away and ran a reassuring hand over my forehead. She told me she had to drape my groin area and my neck. I turned my head to the left and it stayed there for the next 3 and a half hours. I was given drugs to calm me and make me not feel all the pain. I dozed off just as the doctor came in. I remember he said he’d take good care of me and I was out.

I awoke to feeling a lot of pressure on my groin and I felt him push the catheter in through the groin. It was too much, I passed out.

The next thing I remember is feeling my heart beat in my upper right stomach. I gasped and tears flowed. The nurse administering the meds rushed over and gave me a bit more. I felt it burn as it when into my arm. I could see the monitors at that point. I watched my pulse go from 119 to 189 and felt my stomach beat violently again. My eyes must have widened in fear because the nurse told me they were still testing and smiled at me.  It was then that she must have realized I could see the monitor because she turned it away from me.

I don’t know if ten minutes or thirty passed but I next felt a burning sensation in my chest. I moaned and the doctor told me he was ablating the area. HOLY HELL it was uncomfortable. I felt like he had a curling iron in there! The nurse gave me some more meds and I relaxed again.

I woke up again to my stomach surging. It is a feeling I hope to never have again. It’s like an alien has decided it no longer wants to reside inside you and is trying to break out by brutally pulsating your chest and stomach. The doctor didn’t talk to me this time. He was pressing so hard on my groin area that I thought he might break my pelvis. I think I passed out for a few minutes.

A small voice said “ouch, ouch” and I realized it was me. The nurse added more meds to my IV and the pain eased up but I’d already felt the 2nd burn. This time it was hotter and lasted longer. What I didn't know at the time was that it was actually the third time they were ablating the bad section. This was the 2nd time in the same place. Between the scorching feeling in my heart and the digging at my groin, I was ready to be done. I was on the verge of telling him that when he said, “GOT IT!”

I was relieved because I don’t think I could have handled another round of pulsating and burning. The dr. told me he fixed me and then left the room to go see my parents. Sally brushed the tears away and the team pulled the catheters out but left the sheaths in.

I was back in my recovery room when three nurses came in to pull the sheaths out. I had one in my neck, one in my left groin area and one in the right groin area. The sheaths allow the doctor to thread the catheters in to your heart via your veins, not my arteries, just like they do for when you have an IV. The sheaths are very, very, very uncomfortable. All my pain and relaxation meds had worn off by this time. I just wanted the pain of them to go away. I was grateful this group of nurses does the pulling as a team. I don’t think I could have waited the 20 minutes between each pulling. One by one they took them out and then held pressure on the points for 20 minutes.

I received a shot of pain meds after that. THANK GOODNESS! Not only was my neck extremely sore from being in one position for 3 hours, but my groin was aching. I cried silently until my mom walked in. Then I smiled and let all the fear go. I wanted her to see I was okay plus the crying didn’t stop the throbbing. Mom kissed my hand because she couldn’t reach my head, and dad kissed my forehead. I was allowed to order food about 30 minutes later. By the time it arrived my stomach was growling so loud that mom asked if I had a bear in there. I ate an omelet, toast and strawberry Jell-O cubes in a half sitting up position. You have to stay horizontal for the first hour after they pull the sheaths, then you get to sort of sit up. Then at the 3 1/2 hour mark you get to sit up ramrod straight. Twenty minutes after that you can get up to walk.

Dr. Kim came to see me just after I woke up from my hour nap. I had dozed off after eating but jolted myself awake when I let go of the remote. My pulse went up to 79. Dr. Kim was all smiles as he told me I was a perfect patient as I didn’t move a muscle the entire time. Apparently he didn’t know I cried. He told me I did have SVT, but after the third burn it was fixed. He said I topped out at 191 beats per minutes and that once they hit the perfect spot the 2nd time I instantly dropped to 69 beats per minutes. He said “You’re cured!” and I grinned. Dad’s face showed pure relief. He told me I didn’t need any BP meds anymore either. I have to see him in a month to double check but he’s confident it’s fixed. He did add that from the way it reacted to the testing that my heart had been having this issue for at least two years.  

At 5:30 p.m. the nurse, Steph, came in and got me out of bed. She was a wonderful nurse- she had me giggling before (we were talking about those People of Wal-Mart emails) and after the procedure. She was gentle and kind. As she checked my groin wounds she warned me that Dr. Kim had been very messy, and by all that is holy she was right. She left me alone to use the restroom and I kid you not, if Steph hadn’t warned me I would have thought I had my period which is impossible since I don’t have a uterus! As good a doctor as he is, he left a lot of blood behind. I was shocked by the sight of it. However, I shrugged it off because my pulse was back to being low. And that’s all I wanted! After making two laps my BP was 117/83 and my pulse was 70. Hallelujah!

I was released at 5:45 pm. I felt so weird. I was used to feeling my heart beat so hard and suddenly I couldn’t feel it. I still am waiting for it to speed up today. But it hasn’t and I don’t think it will. I went to bed after NCIS LA but didn’t sleep like I thought I would. I couldn’t get comfortable because I knew that I could start bleeding in the groin area again if I moved wrong. I kept my cell phone right next to me throughout the night.

I was able to find a bit of relief after taking ibuprofen at 6 a.m. and lying on my right side. The muscles in my neck and groin hurt like hell. The best way I can think to describe the discomfort is to tell you I feel like I had a very long night of rough sex but without the orgasm. I am walking a bit bowlegged and sitting in one spot too long causes me to ache. And you don’t want to see the bruises. Oh my, they are dark and large already. They cover the top of my groin area, part of my inner thighs and a bit of the tops of my thighs. My neck has a nice bruise coming up too. I look like I have been choked on that side.

I will gladly take this discomfort. My heart feels normal and the sensation of it working so hard is easing up. My chest is tight but with each cough I get it to loosen up and relax. I had been taking shorter and shallower breaths for the past few months, I have to retrain my lungs to take nice deep breaths. Dr. Kim did tell my parents and me that it will take a few weeks for my heart to retrain itself. I can already tell a difference in it as the day passes. I started out this morning feeling it still working hard, now as I type it’s lessening though you can still count my pulse by watching my fleece jacket move.

The moment of pure relief and joy (with tons of tears) was after I was downstairs this morning and came back up less than three minutes later. I took my BP and it was normal with a pulse of 66 compared to 123 on Monday! I am blessed that it’s fixed and that I can start getting back to the woman I used to be a few years ago.  

I know all the prayers sent out on my behalf are why the procedure went well and how good I feel today. Tony made sure I knew he was there too. How? Here are the songs that came up on my iPod as I waited to be wheeled back:

1.  I Believe by Diamond Rio  (a song about angels… the song I turn to a lot)
    
     2.  Sing Me Back Home by Merle Haggard (music soothes me and this song is all about how a song can take you home)
     
     3.  Joseph’s Lullaby by MercyMe (my favorite lullaby… its Joseph singing to his   newborn son telling him to just be his son for this one night. I love the story of this one)
     
     4.  You’ll Be There by George Strait (one of my all-time favorite songs- knowing that your loved one will be there when you get to Heaven, what more can you ask)
     
     5.  Why Not Now by George Strait (I was thinking about love and what it means. Plus there’s a line about “no one knows about tomorrow” and it was Tony’s way of telling me to be in the moment)
     
     6.  You Can’t Make a Heart Love Someone by George Strait ( I was praying about lost love when this one started)
     
     7.   Burn by Jodee Messina (I think he was being sassy with this one!)
     
     8.   What a Wonderful World by Rod Stewart (I was praying for continued blessings for my family and friends)
     
     9.   Vincent by Josh Groban (a song that I really like and always calms me)
   
   10.   Amazing Grace by Lari White (it’s my favorite gospel song)
   
   11.   Love Song by Miranda Lambert (I was praying for a true love if I made it through the procedure when this one started)
   
   12.   The Only Promise that Remains by Reba and Justin Timberlake (every time I hear this song I think of Tony leading me to where I need to be)
   
   13.   Meant to Be by Tracy Lawrence (TL is my favorite country singer and this song is one of my top faves of his. Tony knows how much I take comfort in TL’s songs. And he was telling me I was where I was meant to be)
   
   14.   With Arms Wide Open by Creed (I know he was trying to tell me he’ll be there at the gates waiting for me when it’s time. I also think he was trying to remind me to go for the dream)
   
   15.   Forever and Ever, Amen by Randy Travis (even though he’s in heaven, the bond is forever)
   
   16.   I’d Come for You by Nickleback (16 happens to be my lucky number and Tony wanted me to know he was there and that he wouldn’t let me down. I didn’t get to hear the entire song I just saw that it was 16 and the title.)

     I needed no further proof he was there. I felt him and heard his messages loud and clear. And today starts the beginning of following the dream I’ve always had in me! 

     THANK YOU for all the prayers and support. I love and cherish each one of you!

     ~ The Composer

Tuesday, March 5, 2013

Who am I????

                                         Who are you?
I was honored to be tagged by Scarred for Life for this. I will be tagging some of my favorite blogs at the end. Now to give you some more info on me!

1. Where were you born? Wisconsin (GO PACK GO!)

2. Were you named after someone? Not for my legal name, but for my baptismal name I have my maternal grandmother's name- Anna.


3. How many children do you have? I do not have children. 

4. How many pets do you have? 1 dog, Maybelle. She's the 8th dog that has owned me. 

5. Your worst injury? I was learning how to ride a bike on my brother's BMX bicycle. He hadn't taught me how the hand brakes worked yet. A teenager in the neighborhood thought it would be funny to drive by me really fast and close. I panicked and used the handbrake. I went airborne over the handlebars and landed chin first on the asphalt. I came up crying and was more concerned about the button that came off my sweater. I ended up in the ER with a plastic surgeon whistling to me as he put 300 stitches in. The scar is minimal now thanks to him and my mom not wanting me to have a ugly scar.

6. Do you have a special talent? Um... not that I can think of. Unless you count being able to pick stuff up with my toes.

7. Favorite thing to bake? I'm not much of a baker because dad's diabetic, I'm gluten intolerant and mom likes only doughnuts.

8. Favorite fast food? Wendy's bacon-nator and Jack in the Box's jalapeno poppers

9. Would you bungee jump? HELL NO!

10. What is the first thing you notice about people? If they are smiling or not. I hate my smile right now, but smile anyways.

11. When was the last time you cried? really cried?? Re-reading the posts I wrote about Tony, the Nightmare ones.

12. Any current worries? Oh lord, there are a few. One- why my pulse and bp are up and out of control. Two- money. Three- how my mom's dementia is progressing

13. Name 3 drinks you drink regularly. Coffee (Green Mountain's Wild Blueberry is my fave!), Dr. Pepper Cherry and water

14. What's your favorite book? "Seventeenth Summer" by Maureen Daly. It was published in 1942 and takes place in Wisconsin. I read it every summer, have since I was 14. My aunt gave it to me and I treasure it.

15. Would you like to be a pirate? I've been a pirate since 1990 when I started high school! Argh!!!! LOL

16. Favorite smells? Blue Aqua body spray by Bath & Body Works, Channel Chance, Lilac and Lavendar

17. Why do you blog? I blog because I LOVE to write. I needed a place to share the journey of my grief and depression. I hope and pray it helps someone else along their journey. My other blog is about the journey I'm on with my mom and her dementia.

18. What song do you want played at your funeral? Hell Yeah by Montgomery Gentry, She's too fat for me Polka, Reba's I'm a Survivor, Tracy Lawrence's Find out Who Your Friends Are.... the list is long!

19. What is your favorite thing about yourself? My mind. I love to learn and I have opinions that I'm not afraid to share. 

20. Favorite hobby? Reading, writing, and now that I'm learning how- SEWING

21. Name something you've done, you never thought you would do? Share the story of my nightmare.

22. What do you look for in a friend? Humor, sass, compassion, and a big dash of awesomeness!

23. Favorite fun things to do? dance, just spend time with my friends and my favorite little silly monkey (he cracks me up!)

24. Pet Peeves? bad drivers! 

25. What's the last thing that made you laugh? The phrase "that girl has 67 protons!" go here to see the definition: 67 protons definition

Now tag some bloggers to pass along this quiz to!

I am tagging:
The Apocalyptic Ginger Chronicles
I Survived Cancer and All I Got Was this Stupid Scar

Monday, March 4, 2013

Buzz! Buzzzz! BUZZ!


The first time it happened to me I didn’t know what was it was. I felt a twinge in my right neck, not a cramp but more of a zing of the nerves. And then a chill followed. I thought I had twisted my neck wrong. But then it happened again about three minutes later, and I hadn’t turned my head at all. In fact I was thinking I should grab a muscle relaxer. It kept happening on and off for thirty minutes. I started to worry and wonder what was wrong with my neck.

CRASH!

I ran in to my spare room and the picture of Tony and I was lying on the floor. It had fallen from the bookshelf, without knocking the angel that stood in front of it off the shelf. I was just staring at it when I felt the twinge and chill again.

“WHAT THE HELL!” I exclaimed causing my dogs to come in to the room and look at me. I picked the picture up and put it back. I shook my head a couple of times and went to the kitchen for an ice pack.

CRASH!

“You gotta be fucking kidding me!” I said aloud. Back in to the spare room I went with my two pups following behind. The picture was on the floor again. As I picked it up, the twinge and chill happened again. I was starting to get a feeling someone was trying to get my attention.

“Alright Tony, what’s up?” Of course no answer seeing Tony’s in heaven.

“Seriously you ass, stop knocking the picture down. And if that’s you causing my neck to twinge, QUIT IT!” (A week in to living in my own house, about 3 months after Tony died, he figured out how to make stuff fall off my shrine to him. So this incident wasn’t the first time he’d caused the picture to fall.)

I honestly thought I was losing my mind. I took a couple deep breaths and nothing happened. So I went outside with the dogs and noticed a green headed mallard waddling in my neighbor’s yard. I stared at it for a long time. It quacked and I said (I’m not kidding here) “Tony….?”

“Quack, Quack”

I cried standing out there in my driveway. If any of my neighbors saw or heard me, I don’t know. But if they did I’m sure they thought I’d lost my ever-loving mind. I knew it was Tony letting me know he was around.

I get that twinge and chill- I’ve started referring to it as getting “buzzed”- every time something important is about to happen, or if I need to pay attention to the sign he’s sending me, or if he just wants to annoy me.

I get buzzed when I’m in my own head too much. If I ignore it, Tony increases it and will cause a kink to happen in my neck. I’ve learnt not to ignore it. LOL That kink hurts! He can be really persistent!

I got buzzed when my sump pump quit working. I've gotten buzzed out of my sleep when Petey was starting to get ill. I got buzzed for 30 minutes before we got the call that my aunt passed away. I got buzzed the day before my Trixie went over the Rainbow Bridge. I was driving to see an old friend one day when I got buzzed so hard I pulled over. When I got going again I came upon a bad auto accident.

I kept getting buzzed back in WI last spring in regards to an old friend. It was weird… she’d dream about a mutual friend of ours that passed away and I’d get buzzed (that friend’s buzz was different from Tony’s) until we connected on the phone or Facebook. It usually was that she needed me to come help her due to a back problem she was having. Once her back got fixed, the buzzing from him completely stopped.

Sometimes I can’t figure out exactly why Tony buzzes me. Those are the times that I think he’s doing it just to get back at me for being a pain in the ass little sister. But no matter what, when it happens I take a minute or two to really look at what’s going on around me.

Tonight I got buzzed as I was about to log off Facebook. I took a breath and went back to my main page. That’s when I got a video from my favorite silly monkey (his mom posted it for me). I watched the video and cried a bit. As I was about to log off again, the buzz came. This time I went back to my page and saw a post from my sister. Tony was making sure that I saw what she posted so I could send her love, support and remind her that he watches over her too.

I messaged her a bit and then logged off and shut down my laptop. I went in to the kitchen to grab a bottle of water and it happened again but I was trying to ignore it as I talked with my dad about missing my silly monkey and needing a good cry. I was back in my room when the next one came, this time a bit stronger. I looked at my laptop and said aloud, “You want me to share this don’t you?” BUZZ!

I was feeling very lonely and sad just before the buzzing started tonight. Now as I finish this post, I feel connected and a smile is on my face. Some people will never accept what happens to me and that’s okay. I know what I’ve experienced and I know a few others who’ve had similar experiences. I’ve always been open to this type of thing. I wish Tony would come to me in my dreams, but he doesn’t. I’ve only seen him in my nightmares. I think he knows that for me the dreams would be too vivid, too real. He sends me songs and buzzes me. That’s the way he connects with me, to show me I’m never alone and for that I will forever be grateful.

~The Composer